William de Rycke-Corthier, a one-year-old Belgium boy who suffered from Menkes Disease, recently passed away, waiting for a therapeutic option. In his honor, his family through Voor William (Menkes association Belgium) and Menkes International Association (MIA) would like to present this award for a physician, scientist, investigator or working group who makes an important contribution in the research field of this fatal disease.
Menkes
Patients Registry
We strongly encourage everyone interested in Menkes disease, particularly health professionals, researchers, and patients’ families, to join our network and be part of the First Menkes Patients Registry.
Marco is not a baby but an angel. Can you help us cut his wings?
Making Menkes disease history
Making Menkes disease history
Making Menkes disease history
Making Menkes disease history
The Copper Star
The symbol of our Association was created to honor all our children who got their wings to reach the stars, especially in honor of Leonel whom his mother calls “The Prince of the Stars”.
The five pointed star is known as the Pentalpha of Pythagoras or Pentangle of Solomon, and represents the healthy human body as a head, two hands, and two feet.